Errant text message leads to unconventional love and a kidney transplant

Thank+you%2C+says+Kasey+Bergh+as+she+kisses+her+husband+Henry+Glendening+goodbye+in+the+preoperative+area+before+he+donates+a+kidney+to+her+at+Barnes-Jewish+Hospital+on+Tuesday%2C+April+9%2C+2019.+More+than+three+hours+later%2C+Glendenings+kidney+would+be+walked+from+his+operating+room+to+hers+next+door.+

Robert Cohen/St. Louis Post-Dispatch

“Thank you,” says Kasey Bergh as she kisses her husband Henry Glendening goodbye in the preoperative area before he donates a kidney to her at Barnes-Jewish Hospital on Tuesday, April 9, 2019. More than three hours later, Glendening’s kidney would be walked from his operating room to hers next door.

By Michele Munz, St. Louis Post Dispatch

ST. LOUIS — They wait behind curtains just a couple of hospital beds away from each other, a 59-year-old woman needing a kidney and a 30-year-old man donating his to her. Nurses and doctors are making all the necessary preparations for the transplant surgery.

“Are you related to the donor?” nurse Diana Walker-Seawood asks the recipient, Kasey Bergh of St. Louis.

“He’s my husband,” Bergh answers. Then a pause. “Do you want to know the story?”

Advertisement

The nurses and doctors within earshot in the pre-operation area at Barnes-Jewish Hospital gather closer.

“I was in Denver on a Purina work trip, and I sent a text to another Purina person,” she begins, “and it was a wrong number, and it was him; and now we’re married, and now he’s giving me a kidney.”

Everyone oohs and aahs.

Bergh sent that errant text message to Henry Glendening almost six years ago. After texting back and forth and finding uncanny things in common, they decided to meet. Three years later, in June of 2015, they got married in a small ceremony along the graffiti art-covered flood wall of the Mississippi River.

Their odd story of finding love went viral, shared across the world. She was blonde and vivacious; he was tall and handsome. Bergh said she felt like people saw them as “Ken and Barbie,” their story like a fairy tale.

Others likely scoffed at the 30-year age gap and assumed that the relationship surely wouldn’t last. But nearly four years into their marriage, their love for each other is stronger than ever.

That wrong number led Bergh to find not only love once again but also the man who, saved her life with his kidney.

Advertisement*

It also led Glendening to kick-start a successful career and relish the opportunity to help another human so remarkably.

They say it’s a bit of proof that there’s a perfect order, a higher intelligence behind what brought them together.

“Our relationship is something to be held and cherished as a true gift from the universe,” Bergh said. “You might say I helped him have a new life when we met, and now he’s helped me with a new one as well.”

While serendipitous, their marriage has been no fairy tale, they say. The age gap is not the problem. That is more of something they laugh about, like when the waiter assumes she’s his mother and hands her the check.

Like any relationship, their struggles boil down to personality differences and failing to communicate. Love takes lots of work, commitment and understanding.

“Nothing with us is really typical, but it is in a way,” Bergh said. “There were times when we were mad and hated each other. But we stuck together. It took great love and tenacity to not let go.”

Before the surgery team takes Glendening to his operating room, he says bye to Bergh, who will be wheeled to a room next to his about 30 minutes later. He hangs his bag of intravenous fluids next to hers and sits on her bed. He faces her with his right hand on her left forearm.

She’s worried. “We’re doing this thing, uh?” she says.

“Yeah,” he answers, giving her a calm and reassuring smile.

They chat about how their stomachs feel and how they’ve heard from friends, all wishing them well. The nurse interrupts.

“OK, young man. Looks like it’s kiss-and-hug time,” Walker-Seawood says.

Bergh and Glendening kiss softly several times.

She holds his gaze with her light blue eyes. “Thank you,” she says.

He tells her, “We’ll get you all better.”

HER IMMUNE SYSTEM WON’T ATTACK: Bergh has immunoglobulin A nephropathy, a condition where an antibody lodges in the kidneys and damages their ability to filter waste from the blood.

In 1995, Bergh received a kidney transplant from her sister. Kidneys donated from living donors usually last 20 years at the most, so Glendening knew early in their relationship that Bergh might need a new one. He was always willing to see if he could be the donor.

Bergh’s kidney started to fail soon after they married. For the past two years, she’s had to have dialysis three to four times a week to clean her blood and keep her alive. Bergh had other health problems, which delayed undergoing another transplant.

Last winter, she was finally healthy enough to pursue whether Glendening could be a match.

It’s unusual when a spouse is able to donate his or her kidney to another spouse because of all the factors involved, explained Dr. Jason Wellen, surgical director of the kidney transplant program at Barnes-Jewish Hospital.

The hospital has 790 people on its waitlist for a kidney, and they wait an average of three to four years for a transplant.

A kidney from a living donor is best. One from a deceased donor tends to last no longer than 12 years.

The Barnes-Jewish Transplant Center — one of the largest in the country — completes about 240 kidney transplants a year, and just 70 involve kidneys from living donors, Wellen said. More than half are related to the recipient.

Each year, the hospital sees about 600 people trying to donate a kidney, he says, but most are ruled out.

Many are denied because of health complications, such as too much protein in their urine or high blood pressure. “Anyone we clear for donation should have no increased risk of renal failure or death for the rest of their life,” Wellen said.

Glendening, young and healthy, passed all the tests.

Blood types also must match. Glendening is the blood type O, which is compatible with all other blood types, Wellen said.

Another problem is antibodies. Transplant recipients must not have any antibodies that can damage the donor organ. People who have been pregnant, had a blood transfusion or a previous transplant like Bergh, create antibodies.

“Most people needing a second transplant have a lot of antibodies,” Wellen said. “So often, we have trouble finding people … her immune system won’t attack.”

Doctors were surprised to find Bergh had low levels of antibodies that could attack Glendening’s kidney.

“Not only did she marry her soul mate,” Wellen said, “but she married her immunologic soul mate.”

THE ALCHEMIST: Instead of ignoring Bergh’s errant text, Glendening helped her through her frustration of not being able to connect with her friends. They quickly learned they believed in the same quirky philosophies like the “law of attraction” — the idea that a person’s positive thoughts can “attract” a desired outcome.

By the time they met, they already had connected on an emotional level. And when Glendening placed his hands on her hips that night, their age difference became an afterthought.

Days after meeting, Glendening left for a road trip he planned out West. He was stuck in an unhappy relationship, selling paint at Lowe’s and needed to “reconnect with the universe.”

After making it through Kansas, Glendening came upon a batch of sunflowers along the highway. He picked one and stuck it on his dashboard.

“When I saw them, I just completely felt Kasey’s energy,” he said. “I hardly even knew her, but I could feel her radiance. They just embodied her. I wanted to have that with me.”

Glendening’s love, Bergh says, makes her feel timeless.

Their age difference was not important to them, but they worried initially what others would think.

“I had to let everyone know we were dating,” she said. “I was self-conscious about holding hands.”

Glendening felt intimidated meeting her friends and colleagues. As the communications director for Nestlé Purina Petcare, Bergh had plenty of black-tie events.

“The people I was talking to were VPs and directors of enormous companies,” he said. “And their children are older than you and higher in their career.”

But the couple did not give in to the negative. “I was determined,” Bergh said. “I was going to get through it and not run away from it.”

It helped that their friends and family were accepting. “When they met Kasey, they welcomed her with open arms,” Glendening said. “As long as we’re happy, they’re happy.”

And it helped that, after Bergh’s encouragement to network, Glendening climbed the software development ladder and now works in applications security for World Wide Technology. He also creates his own apps for smartphones and tablets.

“She really pushed me to follow my passion,” he said.

They balance each other. Bergh is flexible and spontaneous, while he’s a perfectionist who prefers routine. Bergh calls herself a “feeler” and more like “a butterfly flitting all over the place,” while he is logical and linear.

She sees profoundness in his gift of a kidney to her, while he is practical.

The way he sees it, every healthy person who can take time off work should donate a kidney. It’s a laparoscopic surgery done with tiny incisions and just two days in the hospital. “There’s no question whether or not I would do this.” Glendening said. “If I can help her getting back to living life, I want to do that.”

Kasey feels it’s more than the logic.

“He’s not very verbal about his expressions of love, but he loves me so much. I know that through a variety of things, but especially this transplant,” she says. “He might not think it’s that big of a deal, but he’s doing it from a place of tremendous love.”

While they sound like a perfect match, the things that attract them also drive them apart.

They sought help from books and therapists. They reflected on each other’s past and personalities in order to understand each other better. They developed patience and trust.

“When we have struggles, we don’t just throw our hands in the air and say ‘I’m done’ or hold resentment,” Glendening said. “The message tends to be pretty consistent: Any problems or irritations tend to be projections of yourself … how you react to a situation and what they are saying, all comes down to you.”

Life, they say, is a mix. While you can steer your boat down a river, it’s important not to miss the boat in the first place.

Bergh points to the book “The Alchemist” about a shepherd boy in search of treasure. Along the way, he meets an alchemist who helps him through his obstacles. The boy learns to find the treasure within, how if you follow your heart, the universe will reward you.

“We all get caught up in our mistakes, beliefs and negative things in our heads,” she said. “You have to be aware and open, or you will miss the signs.”

‘MEANT FOR EACH OTTER’: The morning after the transplant surgery, Bergh opens her eyes to an enormous bouquet of a dozen sunflowers sitting on a counter in her hospital room. Glendening ordered them a few days earlier so they would be there before she woke up.

“Congratulations!” the card read, as if she had won an award. “I love you, and I’m looking forward to your recovery. Love, Henry.”

It wasn’t until several hours later, around 1 p.m., that Bergh was able to see Glendening for the first time after the surgery. Rolling his IV pole, Glendening walked down his wing of the 16th floor to her wing with his parents by his side.

She’s sitting in a soft chair by a far window when they arrive. They say hello with a kiss and ask how the other is doing. They stare at each other sort of incredulously.

“Did you give me your kidney?” Bergh asks rhetorically.

“Yep, you got my kidney,” Glendening answers.

They tell each other about their aches and pains, the views from their windows and how they slept. A nurse brings in a chair so they can sit next to each other.

“No more dialysis,” she says thankfully.

“No more dialysis,” he reaffirms. “You’re going to be all right.”

They chat about what they ate the night before — he had ice cream while she had broth and Jell-O. He can’t stream Netflix so he’s thinking he’ll hotspot his phone to his iPad.

“Do you like your sunflowers?” he asks. Instead of answering, Bergh tells everyone in the room the story behind them and how he surprises her with them sometimes.

“It’s kind of our special thing,” she says. “It’s so thoughtful of him, sending me all that sunshine.”

She begins to drift into sleep. Glendening asks if she wants to rest, and she says yes. He strokes her face with both his hands. “Thank you so much,” she whispers.

“I love you so much,” he says.

Before slipping out, Glendening’s mom and dad, Elaine and Tom Glendening, give the couple a card. On the front are two otters staring at each other in the shape of a heart. “Meant for each otter,” it read.

They giggle at the note Elaine Glendening, 64, wrote inside:

“First you were joined in hearts, then you joined your lives. Now you’ve even joined through kidney!”

“Ha!”

Advertisement